Enrollment Coming Soon
Importance of Patient-Owned Data
With patient-owned data:
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You will always have a say in what data is reported and collected and who will be able to access it
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You can change your mind at any time and your data will be deleted
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You can have a digitized record of your entire medical journey
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Your data cannot be duplicated, and your experience with the study will be tracked through CridID
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No one will be paid to collect your data and it will not be sold without your consent - it will always be owned by PBC Research Foundation
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Your data will be viewed as non-biased by regulatory boards such as the FDA - our CEO is a patient and is not being paid to collect this data
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Non-duplicitive data will move the rare liver disease space forward and will supplement data in clinical trials and other research centers